Trisomy Oz Prenatal Support
Your Prenatal Diagnosis
Non-directive site offering links information and support for a broad range of congenital anomalies
If you have recently been advised that your unborn child may have a potentially fatal condition, you will be experiencing a range of responses and emotions including confusion, disbelief, anger, denial and grief. You may have been told your baby will die in-utero or immediately after birth, or that survival will mean a life of profound disability and suffering. Your doctors have probably informed you that your child's condition is 'not compatible with life' or 'inappropriate to treat', and that most parents in your position choose to end their baby's life. You may even have felt pressured to terminate your pregnancy.
Access to current and accurate material and contact with others who have travelled a similar path can alleviate much of the confusion and loneliness you are experiencing, and empower you to make informed decisions for your baby.
The information and links provided on this site were of great help to me during my time with Daniel. I hope they will help to make your own journey a little easier.
NOTE: The links on this page also offer information about many conditions unrelated to trisomy.
SEEK GENETIC COUNSELLING
Regardless of whether your baby's condition is inherited or
random, genetics specialists should be able to provide the
most up-to-date information. Insist on being referred to a
genetics counsellor or, if necessary, make direct contact and
explain your situation.
Click here for details for genetics counselling services
throughout Australia.
Note: If you live in a rural or remote area, ask your maternity
care provider to refer you to your nearest major centre, or
arrange for a telephone consultation.
